Enhancing PNH Care: Collaborative Decision-Making and Improving Patient Experience - Episode 7
Patient Voices: Shaping the Future of PNH Care
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Panelists discuss how their lived experiences and insights as patients should inform research priorities, treatment development, and care delivery improvements while sharing hopes for a future cure that would eliminate ongoing disease management needs and allow greater life flexibility.
Video content above is prompted by the following:
- What role do you think patient voices should play in guiding future advancements in paroxysmal nocturnal hemoglobinuria (PNH) care?
- How do you imagine your life might change if there were a cure for PNH in the future?
This program was made possible with support from Novartis Pharmaceuticals.
