Brandi Lewis

Decoding Symptoms: When Fatigue Speaks Volumes

Video content above is prompted by the following:

How do you help patients weigh the risks and benefits of different treatment options?

What tools or techniques do you use to ensure patients and caregivers fully understand their choices?

This program was made possible with support from Novartis Pharmaceuticals.

Videos

Panelists discuss how to help patients weigh the risks and benefits of different treatment options for paroxysmal nocturnal hemoglobinuria (PNH), outlining tools and techniques used to ensure that patients and caregivers fully understand their choices and make informed decisions.

Navigating Treatment Options: Understanding Risks and Benefits

Empowering Patients in Treatment Planning

What resources or strategies do you recommend helping patients and caregivers overcome the initial shock of a PNH diagnosis?

What are the most critical points you emphasize to patients and caregivers during the first consultation?

When deciding on a treatment plan, what factors were most important to you, and how did you communicate that to your care team?

Did you feel included in the decision-making process? What worked well, and what could have been improved?

Panelists discuss resources and strategies to help patients and caregivers cope with the initial shock of a paroxysmal nocturnal hemoglobinuria (PNH) diagnosis, emphasizing critical points during the first consultation, and explore how Brandi communicated her treatment preferences to her care team, reflecting on her sense of inclusion in the decision-making process and areas for improvement.

Recognizing PNH and Initial Challenges

Can you share how you first noticed something was wrong and what led to your PNH diagnosis?

What was the most challenging aspect of the initial diagnosis process for you?

Fatigue and brain fog are common in PNH. How did these symptoms affect your daily life when you were first diagnosed?

When patients mention fatigue or brain fog, how do you assess their severity and impact during initial consultations?

What do they tell you about disease progression or treatment needs?

Panelists discuss how Brandi first noticed symptoms leading to her paroxysmal nocturnal hemoglobinuria (PNH) diagnosis, highlighting the challenges of the initial diagnostic process, and explore the impact of fatigue and brain fog on her daily life. They also address how clinicians assess the severity of these symptoms during consultations and what they indicate about disease progression or treatment needs.

Brandi Lewis

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