Enhancing PNH Care: Collaborative Decision-Making and Improving Patient Experience - Episode 2
Empowering Patients in Treatment Planning
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Panelists discuss resources and strategies to help patients and caregivers cope with the initial shock of a paroxysmal nocturnal hemoglobinuria (PNH) diagnosis, emphasizing critical points during the first consultation, and explore how Brandi communicated her treatment preferences to her care team, reflecting on her sense of inclusion in the decision-making process and areas for improvement.
Video content above is prompted by the following:
- What resources or strategies do you recommend helping patients and caregivers overcome the initial shock of a PNH diagnosis?
- What are the most critical points you emphasize to patients and caregivers during the first consultation?
- When deciding on a treatment plan, what factors were most important to you, and how did you communicate that to your care team?
- Did you feel included in the decision-making process? What worked well, and what could have been improved?
This program was made possible with support from Novartis Pharmaceuticals.
